The India Group

Saturday, June 29, 2013

The India Group Blog by Paul Ramsey


Fourth Entry         
Monday, June 19th, 2013
Baba, Krishna, and I were at the hospital by 7:30 AM.  The first call for surgery was 8:00 and we didn’t want to miss wishing Milli luck if she were with the first group to be operated on, but she wasn’t.   Milli’s group wasn’t called to the surgical floor until around 10:30 where there was more waiting, but on both the pre-op ward and on the surgical floor the patients were keep busy: lessons on hygiene, talking with counselors about the impending surgery, and games, I guess, to keep the mind from fretting.  Milli certainly heard the words before she left home that she was “going to have surgery to fix her lip,” but I don’t think she had any idea what surgery was or why her lip needed fixing.  



Milli looks in the mirror a lot.  I wonder what she sees.  She is a cute but not pretty girl.  Her nose is always running, we found out through specialists provided by Operation Smile, because she has a crooked bone in her nose on the cleft side and allergies.  This runny nose bothers her teachers at school (and me).  There is something unkempt about Milli--hair askew, blouse untucked, uniform wrinkled.  Her father certainly doesn’t obsess about his looks, and her mother doesn’t seem to have the neatness touch.  (I notice that Milli always looks a little better after a visit with Bablu’s wife.)  Several times Milli and her parents were asked if children made fun of her because of her mouth.  I don’t think Milli or her parents had any idea what this question was getting at.  Whatever Milli sees when she looks in that mirror doesn’t seem to worry her, and for this let us give thanks and hope this self-possession or obliviousness or whatever it is carries her through adolescence into adulthood.

Milli’s name is finally called, she looks up when she hears her name and follows the nurse through the open door of the operating suite without the slightest hesitation.  I thought waiting during the surgery would be tense, but there was so much going on, no one had much time to think about Milli’s predicament:  Operation Smile provided for Ramakuiyan to see a dentist.  She has a tooth that has been bothering her off and on for months.  The dentist says it definitely has to come out and puts her on antibiotics to prepare her for an extraction in 2 days.  Krishna and Haman are seen by the pediatrician. 

Much to my surprise, if the answers that Baba gave are accurate, they are up to date on their shots, though I would like for them to be vaccinated against typhoid since at least once a year someone, usually Krishna, seems to come down with the disease.  I worry that one of the children will get too dehydrated and die.  The pediatrician suggests we go to the state hospital to get the shot and prescribes some vitamins and decongestants for the boys.  I’m hoping that Baba and Ramakuiyan can see a doctor.  Ramakuiyan has some periodic condition where her hands and feet darken; this has started happening again.  It seems that she can pass this temporary darkening on to the children when she is breastfeeding (and it is not uncommon for breastfeeding to go on until the child is 5 or 6.  When we had dinner with Bablu he mentioned that his 4 year old son, Deepak, wants his mother’s milk before he leaves for kindergarten each morning).  Baba drinks too much.  A harsher rendering would simply call him an alcoholic.  He can go without a drink for about a month and then he falls off the wagon.  

His blood work suggests that he is a step away from alcoholic hepatitis.  A doctor in Delhi told him that if he didn’t stop drinking he would be dead before he was 50.  He said he didn’t want to die (few of us do), but he bemoaned the reality that the doctor didn’t want him to drink, smoke, or chew betties, a nut that many Indian men chew that has them spitting red.  (There are plenty of graphic public health campaigns on the TV showing the effects of bettie chewing:  rotting teeth at its best, mouth cancer at its worst.)  What Baba wondered was what he was to do for enjoyment and satisfaction.  If I had his life, I’d drink too much too, and when I think about it, would it be so tragic if Baba were to die in 20 years?  Milli will almost surely be married by then--very important for a girl and her family--as will the boys (but the marriage of a boy is of minor significance culturally).  Ramakuiyan might mourn him though she will hardly miss all the headaches his drinking brings, and by then she will have grandchildren and her sons‘ wives to boss around.  Baba is so poor, is it realistic to expect him to give up one of the few things he has, “minor” vices.  Really how much of a life does he have to lose anyway?

In a previous post, I explained that Bablu literally had to flee his home village because of gambling debts he owed.  He moved, eventually with his family, to Delhi because he had relatives there.  At the end of our last TIG “pilgrimage” in February, a few of us visited Bablu’s new home, the wretchedness of which I described previously.  The relative he was living with had a paralyzed brother. 

He crawled around on the ground, using his hands and arms as most of us would use our feet and legs.  All I really remember about the young man, probably 20, was that his eyes were like black discs and very sad.  I asked Bablu about him.  He said that his mother had died 6 months before and no one really took care of him anymore.  He had a terrible cough; I suspect he had TB.  One of the TIG members, Bobbi, who was also visiting, noticed the daughter in the family, Chahat, who is 3.  Bobbi saw something in this little girl and said she would pay her tuition ($350) for a year, so she could start pre-school.  We’d already identified a school for Bablu’s children, so we asked Chahat’s parents if they wanted her to attend school.  They said of course they did, so we enrolled her.  Had Bobbi not been there, I never would have noticed this child (one of the things I’ve learned by making these trips to India with a small group is how much I miss on the interpersonal side.  I think I’m so into getting from place to place that I forget to see the people we’ve come to work with), but once Bobbi had pointed her out, I did see that Chahat had incredible charisma.  

Chahat and Family

When we leaving, I told her father that we were helping his daughter out and I’d like for him to do something for us:  take better care of his paralyzed brother.  He said understandably defensively that they did take care of him.  That’s not what Bablu said and not what I saw.  I said to the young man on the ground that when I returned, I was going to see if we had enough money to take him to a doctor to find out what was up with that cough.  I thought fleetingly that maybe we would even find a place for him at one of Mother Teresa’s homes as TIG members volunteer at a home for disabled boys and men outside Kolkata.  If we couldn’t find a place for him near Delhi, maybe we could find the funds to move him to Nabo Jibon near Kolkata.  All this I said and thought quickly without really looking at the man, though I did see him there on the ground.  Two days after I got home Bablu called to say the young man had died.  The family noticed too late one day that something was wrong with him--so wrong that they couldn’t ignore it anymore--so they found a cab to take him to the nearest hospital.  On the way there, he died, in the cab.  I suppose not wanting to waste money they didn’t have, they told the cab driver to turn around and take them home.  No need to waste money or time on the dead in a hospital.  When I talked with Bablu about the young man’s death, he said, “I’m glad he died.”  It’s sort of what I’ve been thinking about Baba and his life and possible death.  How tragic would it really be?  The tragedy is the life he leads.    

An Operation Smile staffer walked us over to the Mahendra Mohan Chandhury Hospital “complex” (Operation Smile is an independent hospital within Mahendra).  I believe it is a privately run hospital, but the chaos we encountered seemed like that I’ve seen in state-run Indian hospitals.  The bottom line is that they had no time or staff to waste on Ramakuiyan’s and Baba’s minor health problems.  Ramakuiyan tried to explain to a nurse about her darkened hands.  The nurse looked at her and said, “There’s nothing wrong with them.”  When we returned to Delhi, we were able to get an appointment with a doctor who said that the darkening was caused by some kind of calcium deficiency and has prescribed a medication but Baba says it’s expensive.  Baba also saw the doctor in Delhi.  Baba reports that the doctor says his liver is better but he didn’t give Baba a blood test.  When I asked Baba how the doctor knew he was better without testing his blood, he said the doctor looked at him.

By the time everyone had seen or tried to see a doctor, it was time for Milli to be out of surgery.  They had just brought Milli into the post-op ward when we arrived.  Her eyes were open but she was clearly out of it.  Her lip had definitely been cut.  She wasn’t crying, just staring off into space.  She didn’t respond when we asked how she felt, but Baba noted that often Milli doesn’t respond to questions.  He says she just looks into space.  She was definitely looking into space after her encounter with surgery.

Baba, Krishna, and I went back to the mineral waterless restaurant and got “a pack” of food to take to the hospital.  I suggested to Baba and Ramakuiyan that they take the other children and go back to the apartment so Ramakuiyan could shower and rest.  I said I’d stay with Milli.  Somewhat to my surprise they agreed to leave their recovering child with me.  About half an hour into the book I was reading, a nurse came by and said that Milli should eat.  She was still looking dazed, so I ignored the nurse.  The family had taken most of the food we’d bought back to the apartment, but they had left some dal and rice.  The nurse came back and again told me to feed Milli and get her changed as she had urinated on herself.  I panicked.  I didn’t know exactly what to do with the dal and rice and had no idea how to get Milli changed.  I opted for doing the food, explained to the nurse I was alone and asked if she could wash Milli up while I prepared dinner (I poured the dal over the rice). Since Milli had urinated, they could take her IV out and led her away to clean her up. 

She came back in a new gown, scooped that dal and rice into her mouth as if she hadn’t had surgery, and she and I began to play a card game of War.  When her family returned, they were beaming to see her so recovered.    

Sunday, June 23, 2013

The India Group: The Third Blog Entry


Milli Enjoys a Dental Lesson before Surgery

Friday, June 14 and Saturday, June 15th—Sightseeing:
Since there was nothing we could do for 2 days but wait to see if Millinote the new and preferred spelling of “Milli.”  I was showing her the different ways her name could be spelled and she made it quite clear that I had been misspelling her name:  Her name, she insists, ends with an “i” and so it shall bewould be surgery-ready, we decided to see some of Assam.  I would say that they we were going to do “the tourist thing,” but there are no tourists in Assam to “thing.”  If you look at Assam on the map, you will see that geographically it shouldn’t be a part of India, and one senses that politically its hold to India and India’s hold to it is tenuous. The slightest mass of land, separating Tibet and Bhutan from Bangladesh, joins Assam to the rest of India.  The capital, Guwahati, Wikipedia tells me, has a population of 1.5 million.  I would have guessed between 200 and 300 thousand.  As Baba said, “It doesn’t be like a city,” and it doesn’t.  It reminds me of one of those Atlantic coast towns in South America that are inhabited by the descendants of slaves rather than of the Spanish.  Once when I told a Costa Rican acquaintance that I was going to visit one of these towns in her country, Limon, she said “feo,” ugly.  Ugly and conveniently forgotten they are without the infrastructure their sister cities have as is Guwahati.  The sidewalks of the town look like they are waiting for repair after an earthquake.  You can literally look under the sidewalk where the slabs of concrete are to meet but don’t because one is elevated above the other, producing a gaping aperture that holds an underworld of trash that mirrors the debris above.  The lights go out several times a day and there are no amenities that tourism brings, e.g., something to do.  I have yet to see anyone, other than those of us in the Milli entourage, that I thought might be a tourist.  One of the doctors said to me something that I’d already noticed, “The only White people in town are with the hospital.”

 Operation Smile Staff Celebrates 9000 Surgeries

I’ve asked why the Operation Smile facility ended up in such an isolated location.  The services this organization provides are so needed, why hide them, as it were, under a basket in remote Assam.  I’ve gotten 2 explanations for “Why Assam?”  One doctor told me that the hospital was placed in Assam because the incidence of cleft palates was higher in this region than anywhere outside mainland China. Another person questioned this static and said that there were political reasons for placing the hospital in Assam:  The government wanted to give “them” something, and what a gift it is.  Operation Smile apparently has 2 other permanent facilities. I believe that one is in China and the other in South America (I wasn’t taking notes during the conversation that produced this information, so I can’t swear that I’ve remembered what I was told correctly, and as I write I have no access to the Internet).  Since all the Operation Smile services are free, including the medicine, I would have thought that people in need would be coming from all over India, but apparently this is not the case. Indeed, one of the strangest things about our little group is that we had come from so farfor Milli and her family almost a 50-hour train ride.  We were told that we had come farther than anyone had ever come for surgery.

Milli's Family

Now back to the sightseeing.  There is a scraggily zoothe Bronx it is notthe main attraction being the Indian one-horned rhino.  We were told that across the road was an African rhino.  I wanted to see it for the sake of comparison, but the across-the-road enclosure seemed empty.  When I asked a guard where the African rhino was, he said, “Somewhere in there but we’re not sure where.”  How do you lose a rhino?

Ramakuiyan and Haman in the Cage Line

The other sightseeing opportunity was Hindu temples.  One, Hayagriva Madhave, had some historical interest in that my Eyewitness guidebook says “that the Buddha died here.”  The priest/guide said nothing about this as he led us around intoning  chants we were to repeat.  When I asked him about the Buddha, he said something like “Oh yeah, he did his last meditation here.”  The most mythologically interesting temple is the main one in Assam, Kamakhya Temple. The Hindu Trinity is composed of Brahma, the Creator; Vishnu, the Preserver/Redeemer; and Shiva, the Destroyer.  As I understand it from Baba and a little reading, Shiva and Sati fell in love and were about to be married, but Sati’s father, as is the case with most fathers, thought that no man (and in this case, god) was good enough for his daughter.  (The father didn’t know Shiva was Shiva.)  A family argument ensued (What wedding would be complete without one?), and Sati ended up killing herself by jumping into fire.  Shiva was so upset that he went around the world with Sati’s corpse and where parts of it fell there are now major temples.  Supposedly Kamakhya Temple in Assam marks the spot her vagina fell. 

Entrance to Temple of the Nine Planets

It is, therefore, a very sacred temple and the devotees are so fervent that they have to be controlled by cage-like structures to keep people from trampling each other to get into the temple.  Oh course, to the non-believer all this seems crazy, but then I remember that I am a member of a tradition that believes in the Virgin Birth; I belong to an intellectual milieu that would be loath to disavow that we came from apes; and almost everyone I know thinks it makes sense to pay $300 or more an hour to talk to someone about problems s/he may or may not have.  I guess faith is not reasonable, it’s faith.

Milli’s Family at the hospital

Sunday, June 16th, 2013
Sunday was a day of waiting and anxiety:  Was Milli cold-free enough to pass the surgery hurdle?  We waited at the hospital and finally were called up to see the pediatrician who listened intently to her heart and chest, asked Baba a few questions in Hindi, and then gave his OK.  Next we had to see the anesthesiologist, but he was in surgery.  After waiting for 30 minutes, we were told to go to lunch and return at 2:30.  He would be out of surgery by then.  We went to lunch at a near-by restaurant and I found it to be typical of the Assam culinary scene:  The menu was extensive, but they were pretty much out of everything you ordered except chicken and vegetables. We asked for mineral water, but the waiter opened the bottle before he brought it to the table, so I sent it back (like an inferior wine).  In India there is a distinction made between bottled and mineral water.  The former is local water poured into plastic bottles so it can be refrigerated.  Mineral water is purified water that comes from a factory in a bottle.  Getting the right type of water is close to a life and death matter, so I insist on having the water opened in front of me.  What was unique about this situation was that the restaurant had only one bottle of what was being passed off as mineral waterThe the bottle I had refused.  I’d never been in a restaurant that didn’t have mineral water, but the Assam restaurants always seem to be out of something: Soft drinks, other menu items, and, in this case, mineral water.

Milli before her surgery

When we returned to the hospital, the anesthesiologist was indeed out of surgery and found Milli to be surgery-ready.  Her weight and temperature were taken; she passed a hearing test, gave a blood sample, and we were told at 3 PM that Milli would be operated on the next day and would be admitted at 5 PM.  We returned to our apartment complex.  What were we going to do at the hospital for 2 hours? 

Pre-op Ward

We were to leave for the hospital at 4:45, and Baba said that everyone was ready to go, but Baba always says the family is ready to go, but they never are.  Just as I thought we were leaving, Haman had to have his diaper changed.  We got back to the hospital around 5:20, just as the 30 or so people to be admitted for surgery the next day were walking down the steps on their way to the pre-op ward.  Milli joined her colleagues; Baba, Krishna, and I went back to the same restaurant, that still had no mineral water, for “take away” that we brought back to the hospital where the family ate dinner.  

Settling in the hospital

Ramkuiyan, as did the other mothers/women, stayed the night, while Baba, Krishna, and I, as did most of the other men, went home or somewhere else.  When Ramkuiyan had expressed earlier in the day that she was afraid to stay alone at the hospital, I suggested to Baba that we could stay with her and Milli.  He said, “Don’t they put you to sleep when they do surgery?”  I responded in the affirmative.  He reasoned then that Milli wouldn’t know whether we were there or not, so if Ramkuiyan didn’t want to stay at the hospital, she could come back with us, but he was not spending the night at the hospital.  I guess it’s the difference between mothers and fathers.  And, indeed, when Ramkuiyan saw that she was in a ward with other mothers and children, she seemed quite comfortable.  I think she thought that she would be in a room by herself with Milli, and this would indeed be a unique and unnerving experience for her.

Waiting

It’d been very interesting to see Ramkuiyan on this trip.  She’s never been anywhere before except her village, where she lived before she was married at 16, and Baba’s village, Khajuraho, where she’s spent the last 11 years.  She seldom leaves the house except to go into the forest to gather firewood or to their caste’s well for water.  I had a long talk with Baba about this trip, explaining that Ramakuiyan could not cover her face with the veil of her saree as she does in Khajuraho.  He told me he explained this to her and she’s seems quite comfortable being “uncovered” because the men she sees she doesn’t know.  When we were at Bablu’s house for dinner in Delhi, she covered because Bablu is 6 months older than Baba, so the wife of the younger man, in this case, Baba, is expected to show respect by covering when in the presence of the older male relative.  It’s literally another world.

At the Playground

Not surprisingly, Ramkuiyan is child-like in many ways (what chance did she have for a childhood of her own?). She’s very interested in the games I play with the children and she very much enjoys the cartoons I brought.  We’ve been to a couple of parks and she loves the swings and see-saws.  It’s been nice to see her literally and figuratively come out of the shadows of that dark room Milli’s family calls home. What makes no sense to her is how much we pay for food at the restaurants (5 of us eat for between $15 and $20).  She explains that for what we pay she could buy tons of vegetables and make a lot of chapatis.  True, but they don’t do cleft palate surgery in Khajuraho.         

Sunday, June 16, 2013

The India Group: Paul Ramsey’s Blog: 6/15/13



Second Entry

Mille’s family arrives at train station in Guwahati

Wednesday, June 12Guwahati, Assam
The train arrived in Guwahati, not just on time, but 30 minutes early.  Bilal, the travel agent who helps us arrange our India travels, tells me that this train is the best in India.  I know for a fact that there are much more elegant trains in India, e.g., Palace on Wheels, but they are for tourists and only for tourists.  The twice-weekly train from Delhi to Assam is for Indian travelers and probably is the best in its class.  Actually the trip wasn’t as bad as I had anticipated.  

Asleep in the hotel

I slept fairly well the night before and did a lot of napping during the day.  At the station there was the usual first-time-in-a-place hassles: finding a tuk-tuk (motorized 3-wheel vehicle) for a reasonable price (The first 2 drivers were asking 100 rupees [a little less than $2], so I knew a non-tourist price had to be less.  Of course, when they see you’re traveling with a family, they know they’ve got you by the crosshairs.  Even so, I found a tuk-tuk for 80 rupees and tipped the driver 20, so I ended up paying 100, but I didn’t feel so ripped off.); trying to give directions in the dark to some place you’ve never been to someone who can’t read the directions and can’t speak English and you don’t speak Hindi.  Thank goodness Baba speaks both English and Hindi.  I sometimes wonder how the average tourist manages without a Hindi speaker, but then I remember the average tourist doesn’t end up in Guwahati or with the likes of Baba and his family.

Nikunja, the super

Without too many false turns and much questioning we end up at our destination:  The Chandralya Apartments.  The Operation Smile people in Guwahatia great organization and great people, have secured our accommodations.  The only problem is I’ve given them the wrong date for our arrival.  From day one I’ve written that “we’ll be arriving on Thursday, June 13,” when we’ve always been scheduled to arrive on Wednesday, June12.  I guess the thought of the train ride seemed like 2 rather than 1 day.  Nikunja, the super, appears from somewhere/nowhere and there is what seems like an interminable conversation between several people including Baba.  I can’t understand a word but know that they’re saying you’ve come a day early.  Finally Baba says just those words and I know he’s right.  But Nikunja has 2 rooms and I thank God literally. 

I can’t quite figure out what Chandralya Apartments are.  They’re configured like a dorm suite with several bedrooms off a central living/dining room area with a kitchen.  Some of the units are clearly long-term dwellings as there are brass nameplates on the doors.  Because we’ve come a day early, Baba’s family and I aren’t in the same suite (something else I will come to say a prayer of thanks for) and pity those in their suite who have to endure those children crying and playing age-appropriate but noisy games.  Baba, a typical Indian manperhaps I don’t need the adjective “Indian”has never spent so much time with his family and he says to me when we have to find food for the family that doesn’t want to go to a restaurant, “I don’t like all this crying.  When I’m at home and they cry, I leave.”  I’ve suggested that all these young couples should spend a few days with him before they over-procreate.  He says, “I understand.”

Thursday, June 13Operation Smile Hospital Day
Nikunja and Baba appear at my door at 9 to tell me it’s 9 and the Operation Smile Hospital car will be picking us up at 9:45.  How did the Operation Smile people know we’d even arrived?  But it’s India.  I never totally understand what’s going on or how what happens does.  Breakfast is apparently included with the price of the roomto this day I have never been asked for a credit card or passport or to sign a register.  When I asked one of the doctors about this, he explained, “things are looser here.”  It’s 9:30 by the time I get down to Baba’s family’s suite where breakfast is served.  I try to explain to the cook I can do without, but his only response is how do I want my eggs.  Hardboiled.  When they come I find out Baba and Ramakuiyan haven’t eaten (it’s never clear to me exactly why) but the children have.  I give them my eggs (I hate morning and all associated with it, like breakfast) and go to tell the driver we’re sorry we’re late and they’ll be coming.  Of course, when I get downstairs there is no driver.  Has he left?  No, he hasn’t come explains the gateman.  I go back upstairs where Baba and Ramakuiyan are finishing their eggs.  I’m asking where Nikunja is; he may know something about the driver when I see this arched stream coming from somewhere.  It looks very close and it is.  Krishna is taking a leak out the patio door.  Baba and Ramakuiyan are laughing, I think as much at the look on my face as at their son’s antics.  I’m explaining that they have to use this “as a teaching moment” as in Toto we’re not in Khajuraho anymore.  There’s a toilet in the next room.  There are many potential ‘teaching moments‘ with Krishna:  Feet and butts do not belong on the table in the restaurant and we pay 20 rupees for every broken glass40 rupees so far.

Hospital Intake

Nikunja comes and calls for the car and we’re taken to the Operation Smile Hospital.  I think that the Operation Smile Unit is part of a larger hospital, but I’m not sure and haven’t asked the right person to get a satisfactory answer.  Dr. Mark Schoemann from Princeton Junction, NJ, the head surgeon for Operation Smile in Assamyoung, unpretentious, handsome, exuding genuine kindness and gentleness, and evoking confidence as in “Yes, you can cut me”appears and patiently answers all the questions I have, and those of you who know me know that there was a list.  He explains that Operation Smile is having a Mission in Assam, so there are doctors, nurses, dentists, speech pathologists, and volunteers from all over the world.  Whereas they usually perform between 50 and 75 surgeries in a week, the number will spike to 200 during the Mission.  He assures me that this won’t affect the care taken with Mille.

Mille and her father, Baba at intake

We’re assigned to a “helper” who shepherds us through the intake process.  Ramakuiyan, Krishna, and Haman stay in the inside waiting area while Baba, Mille, and I begin the intake process.  I’m really just along for the ride.  Baba handles his parental duties excellently well, asking me only one question:  Can he use my cellphone number, as he doesn’t have any minutes on his phone.  The diagnosis was overall better than I had anticipated:  The palate was successfully closed during Mille’s first surgery when she was months old, but her lip needs to be “trimmed”; the dentist didn’t see any special problems with her teeth; the speech pathologist judged that she spoke well but may want, when her head finishes growing, to have the bone in her nose straightened.  This may help her breathing.  One of the speech pathologists, from Australia, came over to us afterwards and said that the nose surgery was optional.  Baba said, as any good father would, “Yes, but she should have it.”  Baba wondered if the surgery would stop her frequent nose bleeds and I wondered if it would stop her nose from running constantly.  Both Dr. Mark and the speech pathologist thought that the bloody and running nose would not be helped by the surgery.  The speech pathologist wonders if Mille doesn’t have allergies.  Dr. Mark is going to have her evaluated by an ear/nose/throat specialist (can’t remember or spell what such a doctor is called).  All went well until we got to the pediatrician who decides whether the child is surgery-ready.  Baba told him that Mille often runs a fever at night and has a cough.  I asked Baba how he knew she had a fever.  He didn’t have a thermometer. 

Hospital Sign

I was assured by every woman who heard me that mothers don’t need a thermometer to know whether their child has a feversorry.  I told the pediatrician that if she had to be cold-free to have the surgery we might as well go home now, as I’d never known their home to be cold- or sick from something free.  He told me that if we did the surgery when Mille’s lungs weren’t ready it could be “catastrophic.”  I got the message:  butt out.  They gave Mille, and it looked like pretty much every other child, medicine.  You didn’t even have to go to the pharmacy; it was already there for the handing out.  When we saw Dr. Mark he didn’t seem surprised that Mille would have to wait.  He just said, Come back on Sunday and we’ll see” 

Back in my room, when I reflected on the day, I was really conscious of how minor Mille’s disfigurement was by comparison.  I saw people in that hospital, waiting and hoping, who had no lips to cover their teeth, people with an ever-held towel, that covered whatever it was they were hiding, that was as much a part of their body as any god-given member, people who made you thankful for what you have and didn’t have and made you wonder whether God was good every day to every body.  It was only with a timorous and learned act of faith that I could assent “S/He is.”  I was also struck by the ages of people who had come for helpnot just infants and children, but young adults and people with gray hair.  Why had they waited so long?  What difference did it make if you’d had ‘it‘ all this time?  Nobody new would want now anyway.  But I know it does matter.  I’m old and fat but I never leave that house without looking in the mirror.